So Easter was great, the whole weekend was, it was so nice to not think about cancer. Today we are back at clinic, thanks to Aunt Allyson’s help (she helped with two irritable twins this am and dropped Claire off at Meg’s) I got here by 10:10 (exactly 1 hour after I walked out my door, that must be a record), which was just in time to get his blood drawn because they were bringing some down to the lab. His white cells have dropped, .6 and he is nuetrophenic, so we are on major precautions and for his protection not in the playroom. He is also getting a transfusion right now, with blood curtesy of a good friend. We should be able to go home after as long as he does not react. He is still eating (although tastes change daily, yesterday for the first half of the day it was only sweet, since then it is only salt), and the big news is, he is basically at his pre surgery weight (about 2-5 ounces less), this is HUGE, because he really was not eating after surgery and not at all for the first 20 day stay and does not eat some chemo days. Now we have been feeding him a lot of stuff I never would have dreamed of feeding him pre cancer, but now the only thing that matters is the number on the scale! He also does not have any mouth sores yet, if he is going to get them it will be in the next 24 hours or so since his counts are so low. Also, we have stopped most of his meds since last night for the first time he was dry heave free! So it is all good news, we now need to keep him in a bubble and as the dr said think cool thoughts to keep that fever and a rehospitalization away. We are scheduled to come back here on Thursday if everything goes to plan (which it rarely does, just as I am writing this he started dry heaving) for another count check, possibly platelets and vincristine to officially end this cycle. I feel as if we are riding a wave this cycle and hope it can carry us right into scan day at some point next week, I feel so good about the treatment plan we have and am hoping and praying with everything I have that it is doing its thing to Connor’s tumor and this is an answer for us and will soon be in our rear view mirror.
A few pics from Easter:
And a mommy/Connor selfie at clinic today!