Long Day

It was a really long day, I am reminded how much childhood cancer sucks on days like this. Con was just off, needy, and uncomfortable in his skin, I did not get a smile until dinner. This am we went to the science museum to kill time since Con was NPO, and he refused to do anything, even sit in the stroller, I had to carry all 31 pounds of him everywhere until he fell asleep😢. This was also upsetting for Claire because the museum while a bit over their heads is super interactive, which is perfect for 2 year olds. We only got through three exhibits before Con completely lost it because he woke up and we had to leave, I hope Con can get to a better place this summer and we can try again because I saw a lot he would love.

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After his CT he perked up a bit and by dinner he was feeling better, so much so he insisted on walking through the mall all by himself and saying hi and bye to the cars!

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And I not ashamed at all to admit this is how we got through the day keeping Claire occupied, there were no playrooms today and this is a trick I plan to use a lot this summer (it does not work with Con)!

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One thought on “Long Day

  1. I’m sorry today was hard. And don’t ever feel ashamed for doing what it takes to get through. As the saying goes: few kids go to college with diapers or pacis. 😉 What you do now doesn’t have to be what you do later or at home or whatever.

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