This picture was from my early morning yesterday with Con, shortly before this I coughed and he innocently says to me, “Bless You, Mama”. Gosh I love this kid.
Tomorrow, Amanda is coming for the morning so he will get to do all his favorite things while I work and Casey takes care of all our last minute details for Disney, then he gets to go to Art again which he loves, and I am excited to have another Connor original, here is last weeks “truck”!
After this he gets a visit from his girlfriend Julia who happens to be one of his favorite kids and my dear friend Kristin’s daughter, this change in lifestyle, taking Con out of isolation letting him do and see the people he loves has been so good for him, he is genuinely happy, eating up a storm, getting some color back in his checks and rubbing his head tonight I finally noticed some peach fuzz. Besides the fact that he can’t walk and doesn’t really have great movement of his hands, no one would ever know what was going on inside his poor little body.
To end this we are overwhelmed with the love and generosity showed to our family, just yesterday my sister-in-law’s friend dropped these cakes off, thanks to all of you for showing us the good in the world, and always remembering Claire.