Surreal

Today was surreal, Disney is just pure magic for Connor today! What I can tell you is Con loves characters, shows and hates rides (except “It’s A Small World”) Claire on the other loves rides and is 50/50 on everything else. Today I have gone from beaming to hiding tears as the moments were amazing but the innocence and pure joy in Connor’s face reminds me what is getting taken away from us, there are a few things we are noticing too that will warrant a call to the doctors when we get back to see if these are signs of progression (he can barely get his right arm up to clap anymore among a few other things), but unless something more serious happens we are not going to make that call while here. Here are some of our magical moments from today:

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3 thoughts on “Surreal

  1. Thank you, thank you, thank you for sharing your family with “us”. The good, the bad, the ugly and from today, the most beautiful! For as long as I’ve been following your blog, no one has made Connor smile like Mickey Mouse : ))

  2. You’re so brave Erin. It is magical to picture you four happy, but we know it is not carefree. This trip is not on your schedule. The past year hasn’t been by your schedule. You are making the most of this time while never denying what’s next so you can care & keep Connor safe like only his mother can. Love to you.

  3. What wonderful pictures! Thank you for sharing with us. It is so magical! I think you said it so right, magical but hard. Once again you and Casey are showing all of us what amazing parents you are by making memories for your family.
    Love you all and prayers are always coming your way! xoxoxo Bon

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